Get help navigating clinical trials in rare disease

Our team can connect you with clinical trials to help you evaluate potential treatment options currently available to you.

How it works

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We work to find you the right clinical trial

Get access to clinical trials

We schedule & connect you to researchers

After my son’s diagnosis, I had so many questions and didn’t know where to turn for answers. Know Rare provided incredible support by connecting us to the right specialists. Can’t thank them enough for giving us hope for the future!


Fran, Mom of Diego
Diagnosed with Propionic Acidemia

Our team’s reach:

200+

medical centers worldwide

50+

patient groups & organizations

Meet Andreya

We are on a mission to empower the people of the rare disease community

Our team of dedicated nurses are here to guide families to vital clinical trials, offering guidance, solace, and support.

Know Rare's global impact is a testament to its team who have been impacted by rare disease and are focused on turning their pain into purpose, touching countless lives with empathy and determination.

In need of care and support?

Andreya Fletcher, Nursing Assistant

Recently I had the privilege to be a clinical research assistant where I helped with various aspects of clinical trials such as collecting data, recruitment and specimen processing.  I’m also personally connected to rare disease as my mom is diagnosed with Glanzmann Thrombasthenia which is a rare blood clotting disorder. Through learning from my mother’s experiences and supporting her in her journey, I understand how scary it can be to live with a rare disease. My personal experience combined with my professional experience in clinical research has given me the skills and insight needed to help people affected by rare diseases find clinical trials that are a good match for them based on their lives and concerns.

About Rare Disease

Rare disease, also called an orphan disease, is a health condition that affects a small number of people. A disease is considered rare if it impacts fewer than 200,000 individuals. These conditions can be genetic, environmental, or a mix of factors. Due to their low prevalence, rare diseases often present challenges like limited treatment options and delayed diagnoses. Research and finding effective treatments for rare diseases can be more challenging due to the small number of affected individuals.

At Know Rare we believe we can be better together, and we’re here to help bring rare patients together with one another and with researchers. Working together we can uncover more insights and ultimately help researchers understand more about rare disease so they can discover new treatments for the future.

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