We Are All Rare.
Know Rare Provides Innovative Peer to Peer Clinical Trial Recruitment
Know Rare consists of biopharma experts who are personally touched by rare disease and are active members of the patient community, blending digital innovation with deep patient empathy.
About the Know Rare Network
Know Rare has created a worldwide network of more than 15,000 people living with rare disease. Through a strong influencer network, social media outreach, and collaborations with rare disease advocacy organizations, we provide access to insights that go across rare diseases.
15K+
Patients in our network
200+
Study sites on our platform
50+
Collaborations with patient groups and other organizations
How Know Rare works
Patient Outreach
We find patients via our patient network, social media, ads, newsletters and more.
Patient Profiling
Ai study matching of patient profile to
Inclusion/Exclusion- verified by our nurses.
Follow Up & Facilitate
Empathetic handholding to facilitate the connection between patients and sites
How do people find Know Rare?
People with rare disease find us and join our network through our content. We utilize that content through our social media outreach, blogs, and webinars, as well as through our influencers and partner organizations.
People with rare disease need help. There is just not enough information thats accessible to them to enable an informed decision about managing rare disease and joining clinical trials.
Gone are the days of expecting potential participants to simply find and join clinical trials through clinicaltrials.gov.
Know Rare is here, to help engage and inform people about the options available to them for their rare disease. Our platform helps people throughout their journey, providing access to best practices and clinical trials for their rare disease.
A year after her daughter Sarena was diagnosed with a rare disease her mother Tali was still searching for a trial
The toll of rare disease on mental health
Life with rare disease can put your mental health on shaky ground as you don’t know what to expect in the future.
What you need to know about participating in clinical trials
Clinical trial listings are often complicated. Here’s a quick guide to understanding clinical trials better.
Our Rare Disease Experience
We’ve worked across many different therapeutic areas
RARE NEUROLOGY
Myasthenia Gravis (gMG)
Amyotrophic Lateral Sclerosis (ALS)
Tubular Sclerosis Complex (TSC)
RARE KIDNEY & HEART
Focal Segmental-Glomerulosclerosis (FSGS)
Pulmonary Arterial Hypertension (PAH)
IgAN Kidney Disease
RARE METABOLICS
Prader Willi Syndrome (PWS)
Lysosomal Acid Lipase Deficiency (LALD)
Organic Acidemias (PA, MMA)
RARE CANCER
NUT Carcinoma
Rare Liposarcoma
Acute Myeloid Leukemia (AML)
RARE HEMATOLOGY
Sickle Cell Disease
Immune Thrombocytopenia (ITP)
Autoimmune Hemolytic Anemia (AIHA)
RARE AUTOIMMUNE
Myositis (IIM)
Multifocal Motor Neuropathy (MMN)
Systemic Lupus Erythematosus (SLE)
GENE THERAPY
Sanfilippo Syndrome (MPS-III)
X-linked Myotubular Myopathy (XLMTM)
RARE DERMATOLOGY
Bullous Pemphigoid (BP)
Pemphigus Vulgaris (PV)
We’re on a mission to help fuel the development of new treatments in rare disease
Our team is dedicated to guiding families to vital clinical trials, offering solace and support.
Know Rare's global impact is a testament to its team who have been impacted by rare disease and are focused on turning their pain into purpose, touching countless lives with empathy and determination.
In need of help recruiting your study?
Contact us to learn more about Know Rare
© 2024 Know Healthtech Inc