Welcome to the Rare Insights Podcast
Uncovering The Future Of Potential Rare Disease Treatments
A Podcast Series Interviewing Industry & Organizational Leaders About The Development of Future Therapies for Rare Diseases
Dive deep into the complexities of rare diseases, exploring real-world insights from passionate industry leaders.
Please rate and review the podcast on Apple, Spotify, or wherever you listen. This truly helps us climb the charts and allow more biopharmaceutical executives and other industry leaders, like yourself, to discover the show.
Interested in learning more?
If you are in the biopharma industry and would like more information about Know Rare, visit knowrare.com/sponsors. Any questions, episode ideas, guest pitches, or comments can be sent into podcast@knowrare.com. For our blog and other podcasts and video content, visit knowrare.com.
Our Host
Taren Grom, a well respected media executive, who co-founded and then sold PharmaVoice, the preeminent trade magazine for life science executives at all stages of their careers. PharmaVoice focused on humanizing the people behind the science, a similar sensibility to Know Rare.
New Episode
Conquering the Science of Muscle Disease with Edgewise Therapeutics
Dr. Joanne Donovan, Chief Medical Officer at Edgewise Therapeutics
In this episode we are exploring…
Edgewise Therapeutics’s innovative approach to targeting the “muscle as an organ” in its pursuit of treatments for rare neuromuscular and cardiac diseases, including Becker and Duchene muscular dystrophy with Dr. Joanne Donovan, Chief Medical Officer.
LIVE Episodes
Transformative Cell and Exosome-Based Therapies with Capricor Therapeutics
featuring Dr. Linda Marbán, Chief Executive Officer at Capricor Therapeutics
"Rare Insights," host Taren Grom sits down with Dr. Linda Marbán, Chief Executive Officer at Capricor Therapeutics, to discuss groundbreaking advancements in the treatment of Duchenne muscular dystrophy and other rare diseases through innovative cell and exosome-based therapies. Dr. Marbán shares her journey in the biotechnology field, the unique approach of Capricor’s CAP-1002, and her vision for the future of rare disease therapeutics.
Sustaining A Rare Disease Pipeline with Rocket Pharmaceuticals
featuring Kinnari Patel, PharmD, President, Head of R&D, and Chief Operating Officer, Rocket Pharmaceuticals
"Rare Insights," host Taren Grom sits down with Dr. Kinnari Patel, President, Head of R&D and Chief Operating Officer for Rocket Pharmaceuticals, to discuss the company’s burgeoning pipeline of rare disease assets and why applying data across its portfolio of potential treatments is just one key to the company’s success.
Using “Sea Squirts” to rewrite RNA with Ascidian Therapeutics
featuring Dr. Jay Barth, Chief Medical Officer, Ascidian Therapeutics
Dr. Jay Barth, Chief Medical Officer at Ascidian Therapeutics, speaks about groundbreaking advancements and innovations in RNA editing technology and its potential in the rare disease space.
Our Mission
On “Rare Insights” we bridge the gap between those living with rare diseases and the biopharmaceutical industry. Know Rare amplifies the voices of individuals with rare conditions, providing invaluable perspectives to accelerate therapeutic solutions.
Join us as we dive deep into the complexities of rare diseases, exploring real-world insights from passionate industry leaders. Together, we navigate the unknowns and unlock the potential for groundbreaking treatments.
Because in this journey, we're all rare, sharing unique insights and experiences that drive innovation and progress.
Rare Insights’ team includes Taren Grom, Liz Kay, Kaitlyn Taylor, DNA Today’s Kira Dineen, and Nina Wachsman, CEO and co-founder of Know Rare.
We hope you enjoy listening to Rare Insights. Join us to uncover the future of rare disease treatment.
Interested in learning more?
If you are in the biopharma industry and would like more information about Know Rare, visit knowrare.com/sponsors. Any questions, episode ideas, guest pitches, or comments can be sent into podcast@knowrare.com. For our blog and other podcasts and video content, visit knowrare.com.
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